Monday 13th Oct 2008 - It's Cai's birthday. Cai gets to understand the meaning of having a birthday, lots of presents, although his mum and dad have yet to find one for him yet.
Once again the good news we had last week was followed by a not so good incident. Last wednesday Cai's monitor kept bleeping with a low pulse, at first we thought it was the sensor, however listening with a stethascope showed that he had a very slow and irregular heartbeat with quite a few missed beats. We started to get anxious and kept listening every few minutes and it changed to a more regular irregular beat of very slow then changing very quickly to very fast, we phoned the hospital for advice and by the time they called back over an hour had passed and by then it seemed to be back to normal. The hospital said we should see if it happens again. We asked the spitex nurse to wake us should it happen again during the night and tried to get some sleep.
The next day Cai was in the kitchen with Kerstin, she popped upstairs for around 30 to 40 secs to come down and find Cai looking extremly pale and then faint.
The next evening Cai had another slow heartbeat session so on Friday morning (the next day) we phoned the heart specialist who invited Cai in for a check up later that day. Cai had an ECG and the irregularities showed up, the doctor also explained that the fainting was due to Wolff-Parkinson-White syndrome which means his heart temporarily stops cutting the blood and hence oxygen to his brain causing him to faint, the heart is then kicked into restarting, he assures us no one has died from this but Kerstin can assure you it is still distressing to witness, so now we have to contend with him stopping breathing and turning blue if he gets upset or hurts himself or maybe his heart just decides to stop and he goes white and faints.
I checked the charge forum this week to find another little Charger had been given wings and felt a sadness for the family and a thankfulness that we could celebrate Cai's third birthday on Sunday.